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Exciting News and Not So Exciting News.
EXCITING NEWS! A friend of mine has been working tirelessly on getting this accomplished. Good job Annamarie. At 2:40 eastern time today, the national committee on newborn screening voted to YES to...
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A Day in History.
So it is official! HHS Secretary adopts recommendation to add Congenital Cyanotic Heart Disease to the Recommended Uniform Screening Panel (PDF – 212 KB) 09/21/2011 I just want to thank a dear friend...
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The Heterotaxy Network
First, I am sorry for my lack of updating this blog lately. I have been focusing much of my attention on getting our new Heterotaxy Network site up and running. This is incredibly important to me....
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Meet Baby Pierce
Meet Baby Pierce. He has a very similar type of Heterotaxy that Logan has. Jessamyn (Pierce’s Mother), myself, and many others fought like mad to get him transferred to a heart center that has more...
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Pierce featured on CHB’s Website
Social media helps bring very sick patient to Children’s by Tripp Underwood on December 21, 2011 (taken from CHB’s blog) Pierce Heilinger recently underwent a complex surgery at Children’s Hospital...
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I wear red for Logan.
The Month of February is Congenital Heart Disease Awareness Month. Today had me thinking about the last 3 years and everything we have been thru. Honestly, I don’t know how I got thru it. From getting...
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